Update on Leah:
We have had a really good few weeks here at home. With the exception of the spinal tap days at clinic everything has gone well. Leah has had good numbers on her labs and has felt well - up playing with her brother and sister and being more of her old self. Today she is in clinic and starting phase 3 of her treatment. She won't have another spinal tap for a month and clinic days will be every 10 days this phase instead of once a week. She takes it all in stride and is a real trooper.
The rest of the crew:
They are doing well. Isaac is his usual all boy self. He is borderline obsessive about dinosaurs right now. Needless to say we have plenty of dinosaurs in the house - ones that walk and roar, ones that don't, ones that go in the tub, an assortment of dinosaur jammies and several dinosaur shirts. Mae is cute as a bug and happy go lucky as usual. Neither of them like Leah to go to clinic but it has just worked its way into our life as if it had always been there. Words like Charlie, port, clinic, leukemia, medicine, & chemo are common vocabulary among my children. It is our new normal. Aaron is growing like a weed. He turned 3 months the day after Christmas. He is the most pleasant child; always content to play eat and sleep. Last night Adam was dancing around him being silly and he started doing a deep belly laugh. The kind that 6 month olds do. It was absolutely adorable! He's laying in his bouncy right now grinning at me. He also just discovered the ceiling fan.
That is the run down on our house though. Leah has cognitive testing tomorrow so she and I will be out of the house part of the day. Well, need to go feed the youngest one. Later.
Recent Comments